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Donate
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Understanding NF
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Neurofibromatosis
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Intro to NF
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NF1
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NF2
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Schwannomatosis
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Genetics of NF
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NF Registry
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NF Heroes
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CTF Biobank
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This is NF Photo Series
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Make NF Visible Photo Series
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Patient Engagement Program
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Newly Diagnosed
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Find a Doctor (US)
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Find a Doctor (Europe)
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https://ctfeurope.org/understanding-nf/find-a-doctor
NF Forum
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Symposia
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NF Camp
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CTF Library for Kids
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Contact Us
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Mission and Impact
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/who-we-are/our-mission
Our Core Values
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/who-we-are/our-core-values
CTF Europe
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https://ctfeurope.org/
Foundation Staff
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/who-we-are/staff
Board of Directors
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/who-we-are/board-of-directors
Business Advisory Council
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Medical Advisory Committee
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Clinical Care Advisory Board
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/who-we-are/clinical-care-advisory-board
Financial Information
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Financial Responsibility
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/who-we-are/financial-responsibility
About the Discovery Fund
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/research/discovery-fund
Young Investigator Award (YIA)
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/research/young-investigator-award-yia
Drug Discovery Initiative Registered Reports (DDIRR)
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Clinical Research Awards (CRA)
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Contract Awards (CA)
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NF Variant Curation Expert Panel (VCEP)
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Synodos
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Genotype-Phenotype
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NF Volumetric Analysis
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Gene Therapy
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/research/gene-therapy
OPG Consortium
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/research/optic-pathway-glioma-opg-consortium
NF Registry
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NF OSI and Data Portal
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Clinical Drug Pipeline
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Biobank
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NF Market Model
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/research/the-nf-market-model
NF Research Tools
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Patient Engagement
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Clinical Care of NF (for Clinicians)
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NF Conference
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NF Forum
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NF Workshops, Partner Meetings and Hackathons
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NF Clinic Network (NFCN)
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REiNS
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Collaborations
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/research/collaborations
INFER: Masterclasses in NF
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MEK
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/first-drug-approved-for-nf
Ways to Give
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/get-involved/make-a-donation
Support CTF at Work
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Spare Change to End NF
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Shine a Light NF Walk
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NF Endurance
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Special Events/DIY
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/get-involved/special-events
Classrooms that Care
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Youth Development
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Connect2Fight Live Stream Fundraising
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NF2 Accelerator Program
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Volunteer
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Raise Awareness
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Advocacy
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Shine a Light Challenge App
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Cupid"s Undie Run
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NF Forum
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NF Camp
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Calendar of Events
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Find an Event
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NF Conference
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NF Forum
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Galas
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/get-involved/galas
Special Events
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/get-involved/special-events
NF Awareness Month
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/get-involved/nf-awareness-month
End NF with Ian Desmond
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/get-involved/end-nf-with-ian-desmond
News & Resources
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Newsletter
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Resource Library
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Media Library
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Branding
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CTF Library for Kids
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Learn more
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/makenfvisible
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/understanding-nf/newly-diagnosed
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/who-we-are/our-mission
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/get-involved/make-a-donation
First Drug Approved for NF Patients in Europe
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/news/first-drug-approved-for-nf-patients-in-europe
Children’s Tumor Foundation Announces Revised Diagnostic Criteria for Neurofibromatosis Type 1 (NF1), Affecting over 2.5 Million People Worldwide
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More
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/news/revised-diagnostic-criteria-for-nf1-announcement
Coronavirus (COVID-19) Update
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/news/coronavirus-covid-19-update
More
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/news/coronavirus-covid-19-update
Children’s Tumor Foundation Announces “Make NF Visible” Campaign for NF Awareness Month
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/news/childrens-tumor-foundation-announces-make-nf-visible-campaign-for-neurofibromatosis-awareness-month
More
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/news/childrens-tumor-foundation-announces-make-nf-visible-campaign-for-neurofibromatosis-awareness-month
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/news/childrens-tumor-foundation-named-best-place-to-work-2021
Children’s Tumor Foundation Named “Best Place to Work”
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More
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View All News
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Children"s Tumor Foundation
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