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What is EDS?
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https://www.ehlers-danlos.org/what-is-eds/
Types of EDS
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/types-of-eds/
Hypermobile EDS and hypermobility spectrum disorders
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/hypermobile-eds-and-hypermobility-spectrum-disorders/
Classical EDS
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/classical-eds/
Vascular EDS
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/vascular-eds/
All types
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/all-types/
Diagnosis
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/diagnosis/
How to get assessed for hEDS or HSD
follow
https://www.ehlers-danlos.org/wp-content/uploads/2019/12/newFlowChartHypermobile_UPDATED.pdf
How to get assessed for a rare type of EDS
follow
https://www.ehlers-danlos.org/wp-content/uploads/2017/08/newFlowChartRARE.pdf
Genetic counselling for the Ehlers-Danlos syndromes
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https://www.ehlers-danlos.org/information/genetic-counselling-for-the-ehlers-danlos-syndromes/
…more on diagnosis
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/diagnosis/
Living with EDS
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/living-with-eds/
Physiotherapy and self-management
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/physiotherapy-and-self-management/
Pain
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/pain/
Fatigue
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/fatigue/
Surgery
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/surgery/
Self management
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/self-management/
Conditions linked to EDS
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/conditions-linked-to-eds/
Brain and spine
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/brain-and-spine/
Digestive disorders
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/digestive-disorders/
Postural tachycardia syndrome (PoTS)
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/postural-tachycardia-syndrome-pots/
…more conditions linked to EDS
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/conditions-linked-to-eds/
Children
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/children/
Pregnancy
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/pregnancy/
Your child and the Ehlers-Danlos syndromes
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https://www.ehlers-danlos.org/information/your-child-and-the-ehlers-danlos-syndromes/
Gastrointestinal problems in children with Ehlers-Danlos syndrome
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https://www.ehlers-danlos.org/information/gastrointestinal-problems-in-children-with-ehlers-danlos-syndromes/
…more on children
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/children/
Healthcare professionals
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/healthcare-professionals/
Physical therapy for hypermobility
follow
https://www.ehlers-danlos.org/information/physical-therapy-for-hypermobility/
A midwife’s guide to pregnancy, birth, feeding and EDS
follow
https://www.ehlers-danlos.org/information/a-midwifes-guide-to-pregnancy-birth-feeding-and-eds/
…more for healthcare professionals
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/healthcare-professionals/
Awareness presentations
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https://www.ehlers-danlos.org/what-is-eds/awareness-presentations/
General what is EDS presentation
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https://www.ehlers-danlos.org/what-is-eds/awareness-presentations/
What is EDS for primary schools
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https://www.ehlers-danlos.org/what-is-eds/awareness-presentations/
What is EDS for secondary schools
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https://www.ehlers-danlos.org/what-is-eds/awareness-presentations/
Stories
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https://www.ehlers-danlos.org/story-categories/
Education
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https://www.ehlers-danlos.org/story-categories/education/
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https://www.ehlers-danlos.org/story-categories/fundraising/
Management
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https://www.ehlers-danlos.org/story-categories/symptoms-and-management/
Mental Health
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https://www.ehlers-danlos.org/story-categories/mental-health/
Physiotherapy
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https://www.ehlers-danlos.org/story-categories/physiotherapy/
Pain
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https://www.ehlers-danlos.org/story-categories/pain-awareness-month/
Work
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https://www.ehlers-danlos.org/story-categories/work/
Support
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https://www.ehlers-danlos.org/support/
Support volunteers
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https://www.ehlers-danlos.org/support/support-volunteers/
Men’s Coordinators – Simon, Scott & Lee
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https://www.ehlers-danlos.org/support/support-volunteers/mens-coordinator/
Parents’ Coordinator – vacancy
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https://www.ehlers-danlos.org/support/support-volunteers/parents-coordinator/
Partners’ Coordinator – Alan
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https://www.ehlers-danlos.org/support/support-volunteers/partners-coordinator/
Elders’ Coordinator – Caron
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https://www.ehlers-danlos.org/support/support-volunteers/elders-coordinator/
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https://www.ehlers-danlos.org/support/benefits-and-disabilities/
Blue badges
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https://www.ehlers-danlos.org/support/benefits-and-disabilities/blue-badges/
Employment advice
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https://www.ehlers-danlos.org/support/benefits-and-disabilities/employment-advice/
Guides to help with benefits claims
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https://www.ehlers-danlos.org/support/benefits-and-disabilities/help-with-pip/
Information on disability
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https://www.ehlers-danlos.org/support/benefits-and-disabilities/information-on-disability/
Support Groups
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https://www.ehlers-danlos.org/support/support-groups/
Central and Greater London
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https://www.ehlers-danlos.org/support/support-groups/central-and-greater-london/
East Midlands
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https://www.ehlers-danlos.org/support/support-groups/east-midlands/
East of England
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https://www.ehlers-danlos.org/support/support-groups/east-of-england/
Kent
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https://www.ehlers-danlos.org/support/support-groups/kent/
… more regions
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https://www.ehlers-danlos.org/support/support-groups/
Child protection and EDS
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https://www.ehlers-danlos.org/support/child-protection-and-eds/
Parents accused
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http://www.parentsaccused.co.uk/
Parent protecting children
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http://parents-protecting-children.org.uk/
How you can help
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https://www.ehlers-danlos.org/help/
Make a donation
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https://www.ehlers-danlos.org/help/make-a-donation/
Donate today
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https://www.ehlers-danlos.org/help/make-a-donation/donate/
Single donation
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https://www.ehlers-danlos.org/help/make-a-donation/donate/single-donation/
Monthly donation
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https://www.ehlers-danlos.org/help/make-a-donation/donate/monthly-donation/
Leave a lasting legacy
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https://www.ehlers-danlos.org/help/make-a-donation/legacy-donation/
Donate in memory
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https://www.ehlers-danlos.org/help/make-a-donation/in-memory/
In your community
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https://www.ehlers-danlos.org/help/raise-money-in-your-community/
2021 May Awareness Month
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https://www.ehlers-danlos.org/help/raise-money-in-your-community/2021-may-awareness-month/
Collection boxes
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https://www.ehlers-danlos.org/help/raise-money-in-your-community/collection-boxes/
Recycle your used stamps
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https://www.ehlers-danlos.org/help/raise-money-in-your-community/recycle-your-used-stamps/
E-cards
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https://www.ehlers-danlos.org/help/raise-money-in-your-community/e-cards/
Take part in an event
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https://www.ehlers-danlos.org/help/take-part-in-an-event/
Running & walking events
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https://www.ehlers-danlos.org/get-involved/fundraising-events/running-walking-events/
Cycling events
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https://www.ehlers-danlos.org/get-involved/fundraising-events/cycling-events/
Adrenaline events
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https://www.ehlers-danlos.org/get-involved/fundraising-events/adrenaline-events/
Virtual fundraising
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https://www.ehlers-danlos.org/help/virtual-fundraising/
EDSUK Great British Bake In!
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https://www.ehlers-danlos.org/help/virtual-fundraising/edsuk-great-british-bake-in/
Game on!
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https://www.ehlers-danlos.org/help/virtual-fundraising/game-on/
Captain Tom 100 Challenge
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https://www.ehlers-danlos.org/help/virtual-fundraising/captain-tom-100-challenge/
Volunteer your time
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https://www.ehlers-danlos.org/help/volunteer-for-eds-uk/
Become an Area Coordinator
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https://www.ehlers-danlos.org/help/volunteer-for-eds-uk/become-an-area-coordinator/
Become a Fundraising Volunteer
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https://www.ehlers-danlos.org/help/volunteer-for-eds-uk/become-a-fundraising-volunteer/
Other types of volunteering
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https://www.ehlers-danlos.org/help/volunteer-for-eds-uk/volunteer-in-the-office/
Become a member
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https://www.ehlers-danlos.org/membership-account/membership-levels/
Join today
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https://www.ehlers-danlos.org/membership-account/membership-levels/
Become a partner
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https://www.ehlers-danlos.org/become-a-partner/
Green people
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https://www.ehlers-danlos.org/become-a-partner/green-people/
Just About Group
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https://www.ehlers-danlos.org/become-a-partner/just-about-group/
Strata Miniatures
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https://www.ehlers-danlos.org/become-a-partner/strata-miniatures/
News and events
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https://www.ehlers-danlos.org/news-and-events/
Research
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https://www.ehlers-danlos.org/research/
About us
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https://www.ehlers-danlos.org/about-us/
Our vision and focus
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https://www.ehlers-danlos.org/about-us/charity-aims-and-focus/
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https://www.ehlers-danlos.org/about-us/charity-aims-and-focus/our-values/
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https://www.ehlers-danlos.org/about-us/charity-aims-and-focus/our-research-position/
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https://www.ehlers-danlos.org/about-us/charity-aims-and-focus/why-the-zebra/
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https://www.ehlers-danlos.org/about-us/our-patron/
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Login/register
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What is EDS?
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https://www.ehlers-danlos.org/what-is-eds/
Types of EDS
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https://www.ehlers-danlos.org/what-is-eds/information-on-eds/types-of-eds/
Hypermobile EDS and hypermobility spectrum disorders
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/hypermobile-eds-and-hypermobility-spectrum-disorders/
Classical EDS
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/classical-eds/
Vascular EDS
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/vascular-eds/
All types
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/all-types/
Diagnosis
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/diagnosis/
How to get assessed for hEDS or HSD
follow
https://www.ehlers-danlos.org/wp-content/uploads/2019/12/newFlowChartHypermobile_UPDATED.pdf
How to get assessed for a rare type of EDS
follow
https://www.ehlers-danlos.org/wp-content/uploads/2017/08/newFlowChartRARE.pdf
Genetic counselling for the Ehlers-Danlos syndromes
follow
https://www.ehlers-danlos.org/information/genetic-counselling-for-the-ehlers-danlos-syndromes/
…more on diagnosis
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/diagnosis/
Living with EDS
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/living-with-eds/
Physiotherapy and self-management
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/physiotherapy-and-self-management/
Pain
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/pain/
Fatigue
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/fatigue/
Surgery
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/surgery/
Self management
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/self-management/
Conditions linked to EDS
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/conditions-linked-to-eds/
Brain and spine
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/brain-and-spine/
Digestive disorders
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/digestive-disorders/
Postural tachycardia syndrome (PoTS)
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/postural-tachycardia-syndrome-pots/
…more conditions linked to EDS
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/conditions-linked-to-eds/
Children
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/children/
Pregnancy
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/pregnancy/
Your child and the Ehlers-Danlos syndromes
follow
https://www.ehlers-danlos.org/information/your-child-and-the-ehlers-danlos-syndromes/
Gastrointestinal problems in children with Ehlers-Danlos syndrome
follow
https://www.ehlers-danlos.org/information/gastrointestinal-problems-in-children-with-ehlers-danlos-syndromes/
…more on children
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/children/
Healthcare professionals
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/healthcare-professionals/
Physical therapy for hypermobility
follow
https://www.ehlers-danlos.org/information/physical-therapy-for-hypermobility/
A midwife’s guide to pregnancy, birth, feeding and EDS
follow
https://www.ehlers-danlos.org/information/a-midwifes-guide-to-pregnancy-birth-feeding-and-eds/
…more for healthcare professionals
follow
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/healthcare-professionals/
Awareness presentations
follow
https://www.ehlers-danlos.org/what-is-eds/awareness-presentations/
General what is EDS presentation
follow
https://www.ehlers-danlos.org/what-is-eds/awareness-presentations/
What is EDS for primary schools
follow
https://www.ehlers-danlos.org/what-is-eds/awareness-presentations/
What is EDS for secondary schools
follow
https://www.ehlers-danlos.org/what-is-eds/awareness-presentations/
Stories
follow
https://www.ehlers-danlos.org/story-categories/
Education
follow
https://www.ehlers-danlos.org/story-categories/education/
Fundraising
follow
https://www.ehlers-danlos.org/story-categories/fundraising/
Management
follow
https://www.ehlers-danlos.org/story-categories/symptoms-and-management/
Mental Health
follow
https://www.ehlers-danlos.org/story-categories/mental-health/
Physiotherapy
follow
https://www.ehlers-danlos.org/story-categories/physiotherapy/
Pain
follow
https://www.ehlers-danlos.org/story-categories/pain-awareness-month/
Work
follow
https://www.ehlers-danlos.org/story-categories/work/
Support
follow
https://www.ehlers-danlos.org/support/
Support volunteers
follow
https://www.ehlers-danlos.org/support/support-volunteers/
Men’s Coordinators – Simon, Scott & Lee
follow
https://www.ehlers-danlos.org/support/support-volunteers/mens-coordinator/
Parents’ Coordinator – vacancy
follow
https://www.ehlers-danlos.org/support/support-volunteers/parents-coordinator/
Partners’ Coordinator – Alan
follow
https://www.ehlers-danlos.org/support/support-volunteers/partners-coordinator/
Elders’ Coordinator – Caron
follow
https://www.ehlers-danlos.org/support/support-volunteers/elders-coordinator/
Benefits and disabilities
follow
https://www.ehlers-danlos.org/support/benefits-and-disabilities/
Blue badges
follow
https://www.ehlers-danlos.org/support/benefits-and-disabilities/blue-badges/
Employment advice
follow
https://www.ehlers-danlos.org/support/benefits-and-disabilities/employment-advice/
Guides to help with benefits claims
follow
https://www.ehlers-danlos.org/support/benefits-and-disabilities/help-with-pip/
Information on disability
follow
https://www.ehlers-danlos.org/support/benefits-and-disabilities/information-on-disability/
Support Groups
follow
https://www.ehlers-danlos.org/support/support-groups/
Central and Greater London
follow
https://www.ehlers-danlos.org/support/support-groups/central-and-greater-london/
East Midlands
follow
https://www.ehlers-danlos.org/support/support-groups/east-midlands/
East of England
follow
https://www.ehlers-danlos.org/support/support-groups/east-of-england/
Kent
follow
https://www.ehlers-danlos.org/support/support-groups/kent/
… more regions
follow
https://www.ehlers-danlos.org/support/support-groups/
Child protection and EDS
follow
https://www.ehlers-danlos.org/support/child-protection-and-eds/
Parents accused
follow
http://www.parentsaccused.co.uk/
Parent protecting children
follow
http://parents-protecting-children.org.uk/
How you can help
follow
https://www.ehlers-danlos.org/help/
Make a donation
follow
https://www.ehlers-danlos.org/help/make-a-donation/
Donate today
follow
https://www.ehlers-danlos.org/help/make-a-donation/donate/
Single donation
follow
https://www.ehlers-danlos.org/help/make-a-donation/donate/single-donation/
Monthly donation
follow
https://www.ehlers-danlos.org/help/make-a-donation/donate/monthly-donation/
Leave a lasting legacy
follow
https://www.ehlers-danlos.org/help/make-a-donation/legacy-donation/
Donate in memory
follow
https://www.ehlers-danlos.org/help/make-a-donation/in-memory/
In your community
follow
https://www.ehlers-danlos.org/help/raise-money-in-your-community/
2021 May Awareness Month
follow
https://www.ehlers-danlos.org/help/raise-money-in-your-community/2021-may-awareness-month/
Collection boxes
follow
https://www.ehlers-danlos.org/help/raise-money-in-your-community/collection-boxes/
Recycle your used stamps
follow
https://www.ehlers-danlos.org/help/raise-money-in-your-community/recycle-your-used-stamps/
E-cards
follow
https://www.ehlers-danlos.org/help/raise-money-in-your-community/e-cards/
Take part in an event
follow
https://www.ehlers-danlos.org/help/take-part-in-an-event/
Running & walking events
follow
https://www.ehlers-danlos.org/get-involved/fundraising-events/running-walking-events/
Cycling events
follow
https://www.ehlers-danlos.org/get-involved/fundraising-events/cycling-events/
Adrenaline events
follow
https://www.ehlers-danlos.org/get-involved/fundraising-events/adrenaline-events/
Virtual fundraising
follow
https://www.ehlers-danlos.org/help/virtual-fundraising/
EDSUK Great British Bake In!
follow
https://www.ehlers-danlos.org/help/virtual-fundraising/edsuk-great-british-bake-in/
Game on!
follow
https://www.ehlers-danlos.org/help/virtual-fundraising/game-on/
Captain Tom 100 Challenge
follow
https://www.ehlers-danlos.org/help/virtual-fundraising/captain-tom-100-challenge/
Volunteer your time
follow
https://www.ehlers-danlos.org/help/volunteer-for-eds-uk/
Become an Area Coordinator
follow
https://www.ehlers-danlos.org/help/volunteer-for-eds-uk/become-an-area-coordinator/
Become a Fundraising Volunteer
follow
https://www.ehlers-danlos.org/help/volunteer-for-eds-uk/become-a-fundraising-volunteer/
Other types of volunteering
follow
https://www.ehlers-danlos.org/help/volunteer-for-eds-uk/volunteer-in-the-office/
Become a member
follow
https://www.ehlers-danlos.org/membership-account/membership-levels/
Join today
follow
https://www.ehlers-danlos.org/membership-account/membership-levels/
Become a partner
follow
https://www.ehlers-danlos.org/become-a-partner/
Green people
follow
https://www.ehlers-danlos.org/become-a-partner/green-people/
Just About Group
follow
https://www.ehlers-danlos.org/become-a-partner/just-about-group/
Strata Miniatures
follow
https://www.ehlers-danlos.org/become-a-partner/strata-miniatures/
News and events
follow
https://www.ehlers-danlos.org/news-and-events/
Research
follow
https://www.ehlers-danlos.org/research/
About us
follow
https://www.ehlers-danlos.org/about-us/
Our vision and focus
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What are the Ehlers-Danlos syndromes? Management and medical information for people with EDS
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Get Involved Your fundraising, donations, subscription and volunteering could be life-changing
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Support Groups Find your nearest Support Group and reach out to others who understand
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Donate Today Help us support those touched by Ehlers-Danlos syndrome and make their #invisiblevisible
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Donate Today Help us support those touched by Ehlers-Danlos syndrome and make their #invisiblevisible
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Join Us Become a free member of EDS UK and be kept up to date with the charity and EDS
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Join Us Become a free member of EDS UK and be kept up to date with the charity and EDS
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Subscribe Subscribe to Fragile Links, the UK"s only magazine dedicated to EDS, contianing management advice, charity news and member stories
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Subscribe Subscribe to Fragile Links, the UK"s only magazine dedicated to EDS, contianing management advice, charity news and member stories
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October 14, 2021 2021 Christmas Cards available now Our 2021 Christmas Cards are available to buy now
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October 5, 2021 EDS UK awarded Disability Confident Leader Award We are delight to have been awarded the Level 3 Disability Confident Leader Award. This is the highest level of the award.
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July 20, 2021 EDS UK – 2021 Survey for Members Our 2021 survey aims to provide vital feedback to the Big Lottery Fund and helps us to secure continued funding.
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May 27, 2021 School toolkit launched to support pupils with EDS or hypermobility-related problems EDS UK and the Hypermobility Syndromes Association (HMSA) launch an online toolkit for schools to support pupils with EDS and hypermobility-related disorders
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April 23, 2021 EDS UK Bake-In: The winners! We are delighted to announce the 2021 EDSUK Bake-In winners. The voting in both the adult and junior categories was SO close, but we had two clear winners of the Bake-In.
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https://www.ehlers-danlos.org/news/eds-uk-bake-in-the-winners/
April 15, 2021 New children’s picture book raising funds for EDS UK Emily Joshua has written a new children"s picture book call "Big Dog, Little Dog or Someone In_between. The book features a character with hEDS and is also raising funds for The Ehlers-Danlos Support UK.
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