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About PWS
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Newly Diagnosed with PWS
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Standards of Care 0-2
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First Steps Parent Package
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Genetic Therapy for PWS
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Growth Hormone Therapy for PWS
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Stories of Hope
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About SYS
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PWS Models
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Post-Mortem Tissue Donation: Making A Difference
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Virtual Distance Challenge
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One SMALL Step
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Fundraise For Research
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15 for 15 Challenge
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Art Auction
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PWS Awareness Month
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//www.fpwr.org/pws-awareness-month-2017
Other Ways to Give
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Planned Giving
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Share Your Story
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Story of Hope
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COVID-19 Story
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Become an Advocate Reviewer
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Tissue Donation
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Connect with FPWR
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Research Plan FPWR"s five-year plan for accelerating PWS research and therapies to improve the health and well-being of those with PWS
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Get Involved No matter how big or how small, every effort helps us come closer to the day that our loved ones will lead independent lives
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Join Our Events You will be part of a committed group of people dedicated to helping our loved ones by advancing the field of research
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Donate Now Help the FPWR find new treatments and a cure for Prader-Willi Syndrome. You can help defeat PWS!
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How to Identify Mental Health Challenges in Your Loved One with PWS
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Carbetocin Approval: Your Comment Could Make the Difference
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Hyponatremia In PWS Is Rare But Fluid Intake Should Still Be Monitored
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PWS Clinical Trials Alert
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PATH for PWS Data Supports Positive Findings From DCCR Trial
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FDA Advisory Committee to Review Carbetocin (LV101) as PWS Treatment
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Unique MAGEL2 Findings Point to Potential PWS and SYS Genetic Therapy
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PWS Registry Added 208 Participants In Past Year [INFOGRAPHIC]
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Grandma Takes One SMALL Step for PWS Research
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New Paper Provides Data on Vision Problems in People with PWS
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Dispelling the Myths Of Our Life With PWS
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PWS Clinical Trial Opportunity: Pitolisant
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FPWR and PWSA | USA Engage FDA in Patient Listening Session
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Radius Health Announces Pivotal Study for Prader-Willi Syndrome
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Unique Art Auction Benefits PWS Research
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Conferences Annual PWS Research Symposium and Family Conference Learn More
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Learn More
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Learn More
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Join our team today!
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Learn More
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About PWS
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Our Foundation
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Research
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Advocacy
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Clinical Trials
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Registry
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Events
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Blog
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For Researchers
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Get Involved
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