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Researchers – old
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vhl alliance
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Living with VHL
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learn more about our vision and mission »
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Read More »
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https://www.vhl.org/2019-nobel-prize-for-medicine-recipients-recognized-for-cancer-research-through-study-of-von-hippel-lindau-vhl-disease/
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learn more »
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FDA Approves Belzutifanread more
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https://www.vhl.org/belzutifan-mk-6482-pt-2977-and-vhl-disease/
FDA Approves Belzutifan Belzutifan (Welireg; MK-6482; PT-2977) has been approved as a treatment for VHL disease associated tumors. Click to learn more.
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St. Jude Virtual Family Conferenceread more
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St. Jude Virtual Family Conference 12.02.2021 December 2-3rd Registration is open!
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2021 Challenge Matchread more
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2021 Challenge Match Click here to double your end of year donation!
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Upcoming VHL Eventssee all News & Events
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09.20.2021 Parents of VHLers Call
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10.15.2021 2021 Annual Family Weekend
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11.10.2021 Low/No Vision Monthly Call
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12.02.2021 St. Jude Virtual Family Conference
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